And how much we have fought !!!! Above all, my life, you unknowingly turned 9 on April 10, something that was unthinkable the day they gave us the news of your damn diagnosis 8 years ago. But who would tell us that on April 22, that fateful day, you would say goodbye forever.

Give thanks to all of you who have accompanied us in this difficult time, to those of you who have been through the hard times and the old ones. To those who called or wrote to me just to know how we were doing.

Thanks to all of you who collaborated in one way or another in each gala, each solidarity market, especially to “my girls from the market” and boys of course who were always willing to get up early, get cold, travel, and strive to help out. ….. and what a big hand! To my Charanga Calamidades and chache Domingo Abellán, who was always planning what else to do to continue raising funds to continue paying for the research we managed to open for Menkes’ disease in Spain, led by Francesc Palau, along with Janette his wife, in charge of the laboratory. They trusted in a pair of desperate parents, with a clear wish to save our son from such a serious illness. To the Sant Joan de Deu Hospital in Esplugues de Llobregat for always treating us with such affection and professionalism, and helping us to celebrate the first Menkes disease congress in Spain.

To all of you who have helped us to give visibility to the disease that Nono suffered, how important it is to inform people about it. To the City Council of Pozo de la Cañada, and the City Council of Albacete for always being willing to lend us their facilities to be able to celebrate so many charitable events.

To so many and so many people …. angels on earth that I will not name because surely I would leave someone out who I can’t bring to mind at this momento. But you know that you are our family and that we love you madly and especially he who always felt so dear and loved!

To all of you who, without knowing him, came to love him and help him in some way, our battalion !!!

Millions of thanks to the workers of the University Hospital of Albacete, orderlies, doctors, pediatricians, surgeons, nurses, pediatric ICU, cafeteria etc … how many … so many moments we have lived with them and they have made it so easy for us to go through a hospital, which is always so difficult and complicated. And in the last moments they treated us with so much affection and allowed us to give him that rest that he needed without suffering, we will not have enough life to thank you.

For us these days are very hard, very difficult, very distressing, but thank God we have our family and those angels on earth who do not let go of our hand, to be able to bear this pain in the best possible way. And especially to our daughters who have behaved like champions although, at times their eyes tell us that they also suffer. But we will not fail our little star in the sky because he does not deserve it. We will move on, and I hope that soon he can. Think of you, your eyes, your smell, I got up without running to your room thinking that you will be there laughing when you see me go by doing a thousand and a few nonsense for you to laugh, and above all in your uproarious smile that rumbles so much in my head and even more in my heart and we can smile when we remember you.

Always in my heart my precious Pepon !!!!!

Our hearts are broken. I just wish that no parent, no other family has to go through this pain due to lack of research.

We are going to be consistent and fight because life is very beautiful whatever it is and not fighting for what really matters can destroy our lives.

Millions of kisses to heaven my life. Here we are the tatas. Daddy and I will always miss you every second of our life my love. Help us from wherever you are to move forward.