Madrid, Feb 27 (EFE) – Marco, 20 months old, is the first and only child in the world with an “exceptional treatment” and pioneer who tries to solve the lack of copper in his body. He suffers from Menkes’ ultra-rare disease, a genetic and degenerative disorder that takes on special prominence on the eve of World Rare Disease Day.

 

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Marco, the only child in the world in pioneering therapy against Menkes syndrome