Charlie

Charlie is 22 months and was diagnosed when his Mum was 20 weeks pregnant. His brother Dylan died of Menkes a few years earlier. He started copper injections shortly after birth. He has diverticula and his bladder has been punctured twice. He just had a vesicostomy in July and a g-tube placed in December 2019. He will be receiving transfusions to help strengthen his bones starting the 26th. He doesn’t give up, nor does his family.