Menkes International

MENKES DISEASE

Menkes disease falls under the United Nations category of neglected diseases. This needs more attention.

MIa

The International Menkes Association (MIa), and Menkes Europe, were established in 2020 (under Spanish Law 1/2002 of 22 March) to fight a brutal disease that has devastated so many families.

This international network and information platform brings together all stakeholders, the families of the affected children, and the medical doctors and researchers who seek a cure for this disease.

OUR NETWORK

Our platform relies upon an international network of volunteers who share their expertise to ensure the research moves forward and the information flows. The network also provides a support system to affected families.

The Association's Mission

Create the First Menkes international patient’s registry for clinical trials

Administer the Menkes network

Collect all relevant information on Menkes disease from around the world

Promote international cooperation and information exchange

Promote research projects and international cooperation

Support families affected by Menkes disease

We are working together to create a future in which Menkes disease is nothing more than a memory

 

The Association operates with the data framework of the European Union.