Menkes disease falls under the United Nations category of neglected diseases. This needs more attention.
Menkes International
MENKES DISEASE
MIa
The International Menkes Association (MIa), and Menkes Europe, were established in 2020 (under Spanish Law 1/2002 of 22 March) to fight a brutal disease that has devastated so many families.
This international network and information platform brings together all stakeholders, the families of the affected children, and the medical doctors and researchers who seek a cure for this disease.
OUR NETWORK
Our platform relies upon an international network of volunteers who share their expertise to ensure the research moves forward and the information flows. The network also provides a support system to affected families.
LEGAL DOCUMENTS
The Association's Mission
We are working together to create a future in which Menkes disease is nothing more than a memory
The Association operates with the data framework of the European Union.