MARCO II
International Conference on Menkes Disease, Copper & Human Health
17–18 September 2026 • Centre Pompidou Málaga, Spain
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Venue
Centre Pompidou Málaga
Spain
Format
Hybrid Event
Online & In-Person
Languages
English & Spanish
Speakers
25 International Researchers & Clinicians
About the Conference
MARCO II is the second international scientific meeting dedicated to Menkes disease, copper metabolism, and the broader landscape of rare copper-related disorders — bringing together leading researchers, clinicians, policy-makers, patient families, and philanthropic stakeholders.
Building on the success of the inaugural MARCO I meeting held in Málaga in September 2024, this two-day conference deepens the scientific dialogue around diagnosis, treatment, gene therapy, and the lived experience of those affected by rare copper diseases. Researchers will present the latest advances in copper homeostasis, novel therapeutic strategies, neonatal screening, and the intersection of policy and access.
Topics include diagnosis, treatment, gene therapy, neonatal screening, copper homeostasis, patient-centred research and healthcare policy.
Scientific Talks
Latest research on copper metabolism, Menkes disease, gene therapy, neonatal screening, and rare copper disorders from leading international institutions.
Round Tables
Multidisciplinary discussion sessions covering philanthropy, pharma innovation, health journalism, and patient-centred research.
Family Sessions
Dedicated space for families living with rare copper disorders to share testimonials and connect with the research community.
International Scope
Participants from across Europe, the Americas, and beyond — uniting science and human experience across borders.
Scientific Programme
Vishal Gohil — Texas A&M University, USA
César Hernández García — DG Social Security, Ministry of Health, Spain
Victor Faúndez — Emory School of Medicine, USA
Alicia Martínez — University of Murcia, Spain
Juan García Ranea — University of Málaga / IBIMA, Spain
François Boemer — University Hospital of Liège, Belgium
Raquel Yahyahoui — IBIMA, Málaga & François Boemer — University Hospital of Liège, Belgium
Francesc Palau · Vishal Gohil · Denis Broun · Aurora Mateos
Yusuf Hamied (Hamied Foundation) · Javier Romero (ChinaLink ESG) & Salwa Maalouf (Misericordia Foundation, Colombia)
Engrail Therapeutics · Cyprium / Sentynl Therapeutics — chaired by Denis Broun
Testimonials from Menkes families, moderated by Juan Corchero, Chair of the Menkes International Families Committee
François Feillet — CHRU Nancy / Université de Lorraine, France
Theo HATZIPETROS & Matvey LUKASHEV -ALS Therapy Development Institute
James Hamilton — Johns Hopkins University, USA
Shamima Rahman — Great Ormond Street / UCL, United Kingdom
Byung-Eun Kim — University of Maryland-College Park, USA
Anton Ussi — EATRIS-EU
Giuseppe Ronzitti — Genethon, Paris, France
Gabriella Repetto — Universidad del Desarrollo / Clínica Alemana, Santiago, Chile
Astrid Viciano · Javier Tovar · Mapi Muñoz — German Health News Review / EFE / Hospital La Fe Valencia
Family testimonials from patient associations: Wilson Association Spain (Faustino Giménez), Huppke-Brendel / Princesa Gabriella Association Spain (Maripaz) and Menkes International (Aurora Mateos)
Mick Petris — University of Missouri, USA
Juan Carrión — President of the Spanish Federation for Rare Diseases (FEDER)
Charity Gala — 18 September 2026
Restaurante Trocadero · Casa de Botes · P.º de la Farola, 25, Distrito Centro, 29016 Málaga · Free parking for guests
A night to celebrate, raise a glass, and keep advancing the fight against Menkes disease — every seat helps fund treatment and research for children living with this rare disorder.
Why your support matters
Menkes disease is a rare disorder of copper metabolism that severely affects children's development from the first months of life. Thanks to the Menkes International programme, a pioneering treatment based on elesclomol-copper is already offered free of charge to families through their doctors. By attending the gala you help this treatment and the research behind it reach more children. Every seat counts.
About Menkes International & the Named-Patient Program
Menkes International (Copper Rare Foundation — MICu) coordinates the Named-Patient Program that today makes it possible for several children to receive an exceptional treatment based on elesclomol-copper. Join us for this special evening — every seat and every gesture brings us closer to a shared goal: making Menkes disease history. Come and be part of this night: for them, for their families, and for those still to come.
- Host: Domi del Postigo
- Menu by chef Marcos Bellora with wine pairing
- Art auction & quiz
- 1 soft drink & aperitif
- La Chica con Alma & DJ Fon
Ticket purchase: ES40 2100 0928 1302 0006 3432
Confirmation: vicentemateos1@hotmail.com · 651 652 699
Proof of payment and name of guests must be sent upon purchase
With the support of Restaurante Trocadero · Casa de Botes
Venue: Centre Pompidou Málaga
The second MARCO conference returns to Málaga, hosted at the Centre Pompidou — one of the most distinctive cultural spaces in southern Spain, located in the heart of the city's revitalised waterfront. The venue provides world-class facilities for both scientific sessions and open dialogue, set in a city that has established itself as a hub for biomedical research and rare disease initiatives.
- Accommodation: Hotel Maestranza (special rate €165 incl. breakfast) | Contact: maestranza@mshoteles.com
- Streaming — 17 September: https://youtube.com/live/vxsccLsoHt4?feature=share
- Streaming — 18 September: https://youtube.com/live/S9sIf2AhMiQ?feature=share
- Dietary Requirements: Please indicate during registration
Speakers
Confirmed Speakers
Vishal Gohil
Prachi Trivedi
César Hernández García
François Boemer
Javier Blasco
Juan A. García Ranea
Victor Faúndez
Raquel Yahyahoui
Rubén Varela
François Feillet
James Hamilton
Shamima Rahman
Annalisa Scopinaro
Anton Ussi
Giuseppe Ronzitti
Gabriella Repetto
Astrid Viciano
Javier Tovar
Mapi Muñoz
Mick Petris
Pending Confirmation
François Eyskens
Denis Broun
Salwa Maalouf
No speakers scheduled for this day yet.
Registration
Registration for MARCO II is now open. We welcome researchers, clinicians, patient families, patient organisations, health journalists, and all those with an interest in rare copper diseases.
Fill in the Registration Form →