Rudra

Rudra was born a few days before the delivery date. He started having seizures after 45 days after his birth. He was hospitalized for some days but there was no diagnosis. Parents didn’t know what was going on with him. After 7 months, he was diagnosed with a very rare disease called Menkes, related to copper deficiency, but there was no treatment for this rare disease in India. Since then, Rudra is fighting against a large number of painful symptoms, such as seizures, blindness, hypotonia, hernia, gingival swelling etc.

Day by day his problems are increasing without access to any treatment. The family is facing lots of problems but despite this, they are happy with him.