II International Menkes Conference

17 – 18 September 2026. Charity Gala
An event full of purpose and Michelin‑starred dishes. Every ticket supports babies with Menkes Disease.

Save the Date.

 

Early diagnosis of Menkes disease:

A rare condition that demands rapid recognition and action

Authors: Copperless Committee

NPP-Menkes

Named-Patients Program of Menkes International

 

Learn more
Menkes

Network Initiative

Menkes International Association (MIA) is dedicated to bringing together patients’ families, doctors and researchers to an information platform that does research and to connect stakeholders to fight Menkes disease.

Menkes

Patient Registry

We strongly encourage everyone interested in Menkes disease, particularly health professionals, researchers, and patients’ families, to join our network and be part of the First Menkes Patients Registry.

Marco is not a baby but an angel. Can you help us cut his wings?

With our combined efforts we can build a better future for children suffering with Menkes disease.

Read More

Making Menkes disease history 

Making Menkes disease history 

Making Menkes disease history 

The Copper Star

The symbol of our Association was created to honor all our children who got their wings to reach the stars, especially in honor of Leonel whom his mother calls “The Prince of the Stars”.

The five pointed star is known as the Pentalpha of Pythagoras or Pentangle of Solomon, and represents the healthy  human body as a head, two hands, and two feet.